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Cameron is the biggest star I've ever met
27 August 2007
By Lisa Adams
Ewan McGregor is used to mixing with A-list celebrities, but he met an unforgettable star on a secret visit back to Scotland.
The actor was so taken by brave three-year-old Cameron Glasgow, that he swapped movie scripts for kids books to read the youngster stories at Robin House Children's Hospice near Loch Lomond.
Cameron, of Symington, Lanarkshire, suffers from Hoyeraal Hreidarsson Syndrome, one of the world's rarest incurable killer conditions. It means he needs blood transfusions up to three times a week and his heart has to work up to 100 times harder than normal to keep oxygen pumping through his body.
Ewan, 36, popped into the hospice for a surprise lunch to spearhead a new school fundraising campaign, which launches today.
Cameron's dad, Hamish, 28, said: "Ewan was really down to earth. He was great with Cameron. He was really relaxed and you could tell he's a really good dad. He spoke about the little girl who he and his wife adopted and how happy she had made them."
Ewan and his wife Eve Mavrakis adopted five-year-old Jamiyan from Mongolia. UNICEF ambassador Ewan also met homeless kids when he visited a children's shelter in the Mongolian capital of Ulan Bator. That is where he is believed to have first met Jamiyan.
Jamiyan is now settled and best of friends with Ewan's other children, Esther, five, and Clara, 11.
Hamish also revealed there was plenty of movie talk when Ewan came to visit.
"He said the favourite movie he'd done was Trainspotting and the one he liked least was Star Wars," said Hamish.
And there was a surprise in store for Cameron's big sister Rebecca, who received a birthday cake from the star to celebrate her sixth birthday.
Cameron's mum Debbie, 33, said: "We'll struggle to make next year's birthday as memorable as that. "Rebecca didn't want to hold Ewan's hand. She doesn't like cake much and later said she would prefer crispy cakes next year which made us laugh.
"But it was lovely that Ewan made Rebecca feel special. She's a very special girl who looks after her little brother, even though he pulls her hair."
It was a fabulous day after a tough few years, during which doctors doubted Cameron would survive. Debbie recalls feeling thrilled when she discovered she was pregnant with Cameron.
Already mum to Rebecca, it felt like the arrival of Cameron would complete their family. But just four weeks before Cameron was due to be born, midwives struggled to pick up a strong heart beat and estimated he was smaller than he should be.
Cameron was a tiny 3lbs 15oz when he arrived on January 20, 2004. There wasn't even time for Debbie to hold Cameron before he was rushed to a ventilator.
"He was so tiny and everything happened so quickly," said Debbie.
"My husband only just had time to make it from work to the hospital to see Cameron being born. You had to reach into the ventilator to hold Cameron's hand."
However, Cameron slowly started to put on weight so when doctors said he was well enough to go home after 16 days, it felt like they could finally relax.
So at four months when the left side of Cameron's body started shaking, it was very frightening.
Debbie said: "He was lying in his cot and his breathing was irregular. He was very hot and his body was shaking."
Cameron was later diagnosed with Hoyeraal Hreidarsson Syndrome, which meant his bone marrow was failing, causing his blood platelet levels to plummet.
"We were told no one else in Britain has this," said Debbie. "There have been only a handful of cases in the world and I've never had the chance to speak to any other parent with a child with it. The oldest surviving case was a 12-year-old boy."
When he was two, Cameron was having up to 35 seizures a week. Although a healthy person has between 150,000 and 400,000 platelets in their blood, Cameron's levels plunged to 8000. It also meant he lost sight in his right eye.
Then in February 2006, during a routine hospital visit to have a feeding tube fitted, Cameron started fighting for breath.
"He turned blue and you could see the panic in his face," recalls Debbie. "I thought he was dying before my eyes."
After four weeks in intensive care, tests showed Cameron's heart was enlarged as he was also suffering from pulmonary hypertension, a condition which means the blood vessels in his lungs are too small for a normal flow.
To compensate, Cameron's heart had to work much harder to keep enough oxygen pumping through his body. It was hard to take in the doctors' words that the average life expectancy for sufferers was just five years.
Then there was a fresh worry when Debbie discovered she was pregnant again. Doctors warned if they had a baby boy there would be a 25 per cent chance of him also having the disease.
Debbie said: "There was an element of fear. Cameron is Cameron and we love him, but we would never want to have another child with so many problems."
But a pregnancy scan at 20 weeks gave them the news they'd been praying for-they were having a girl who would not be affected.
Debbie said: "I cried. I think they were tears of relief."
Jasmine was perfectly healthy when she was born on November 8 last year.
"We chose Hope as her middle name because we thought she would bring some hope into our lives." said Debbie.
"She is the most contented baby I know and she makes us all smile."
Big sister Rebecca also gives them hope, as tests reveal she is an exact bone marrow match for Cameron.
A bone marrow transplant could boost Cameron's quality of life, but he is not yet well enough for the operation to go ahead.
For now, Robin House, where Cameron and his family go for short stays to recharge their batteries, remains a lifeline for them.
Debbie said: "It's a lovely place filled with fun and laughter.
"I didn't know what to expect when we first visited. I followed Cameron about all weekend because I felt it was my place to attend to all his needs. Once I got to know the team involved in Cameron's care, taking a back seat became easier because I knew Cameron was being well looked after.
"The support from staff and volunteers is exceptional. It's just like having an extended family and even when we're at home, the support is still there when we need it.
"We love Cameron. He's taught us that every day is a new adventure and you have to make the most of every day together."
'Ewan was really down to earth. He was great with Cameron. He was really relaxed and you could tell he's a good dad'
YOU CAN HELP TOO
EWAN McGREGOR is today spearheading a new hospice fundraising campaign to encourage schools and youth clubs in Scotland to sign up for the Rachel and Robin Big Read. He's asking every youngster in Scotland to get sponsored to read to raise cash for children who benefit from hospice care. Kids can pick a reading challenge to suit their ability, anything from a book a week to ten words a day and will receive a sponsor form, sticker and certificate. Ewan says: "Here I am reading my favourite book with Cameron in the library at Robin House." Since Scotland's first children's hospice opened in July 1996, Ewan has been a strong supporter. The Record was a driving force behind building Rachel House, reaching our £10million target in 30 months. A second CHAS hospice, Robin House, was opened near Loch Lomond in Balloch in 2005. To sign up, call Susan Lowes on 0131 444 1900 or email susanlowes@chas.org.uk.
Source: The Daily Record | that's crazy __________________ icon: crazylittlecandygirl when we're miles apart you still reach my heart |